Aim of the research
There is evidence that the use of medicines in Multiple Sclerosis (MS) may be delayed or impaired because of fears about factors such as drug side effects and/or a lack of belief in their benefits. At the same time, relatively little is published about how best such problems can be addressed and the priorities that People with MS have for future treatment improvements.
The research we are carrying out for Bournemouth University UK is unique because it will explore what patients value most from their treatment and their key expectations for their treatment. The survey we will conduct will provide insight in to the behavioural decisions that delay patients from taking their medication. F. Hoffmann-La Roche Ltd (Roche) have funded this research but they have no part in the design, conduct, analysis or interpretation of the study.
How can you get involved in the research?
We are aiming to conduct the survey in 9 countries. For each country, we have surveys in the local language. Click through to participate in the survey, the survey will take around 15 minutes to complete and needs to be completed in one go.
How the data you provide will be used
Your information will provide us with key insights that will contribute to improving care standards and health outcomes, these insights will build upon the ongoing academic research that is being carried out at Bournemouth University. The results will be reported in a publication around the research project and will inform the transformation of MS treatment options to be more in line with patients’ unique needs and preferences. We will publish the findings on our website at www.sos-adherence.co.uk
Frequently asked questions
Why should I participate in this survey:
This survey aims to help to improve understanding of patients’ needs and expectations, by participating you contribute to making this understanding accurate.
How long will it take to complete the survey:
It will take approximatively 15 minutes, and this can vary depending on how proficient you are with computer/phone or the speed of your internet connection.
Are my answers confidential:
All answers are confidential and names and email address are not linked with any responses.
Do I need to do anything differently when answering the survey on my phone:
The only difference is when asked to order number at Question 8, 9 and 10 – you can only use each number once, if you use a number a second time it will delete the previous answer.
I can’t take the survey because of technical issues:
Please contact firstname.lastname@example.org to help fix the issue.
What do I do if I have a query about the survey:
Please send us an email, adding ‘TaP–MS’ to the subject heading.