Aim of the research
Multiple sclerosis (MS) is an incurable disease of the central nervous system, and the most frequent cause of non-traumatic disability in young and middle-aged adults in many developed countries, associated with high personal and societal costs1. MS is estimated to affect 107,000 people in the UK, and 2.5million people worldwide2 (Prevalence and incidence of multiple sclerosis, 2017), and managing MS involves using several approaches at once.
The Multiple Sclerosis: Beliefs & patient Empowerment (MS:BE) study is aiming to;
- explore how treatment expectations and priorities, treatment empowerment, and beliefs about medicines interact with or relate to each other across 9 countries
- explore whether these relationships vary across the 9 countries affecting patient decisions concerning treatment
Background to the research
Previously Treatment expectations and Priorities of People with MS3 TaP-MS study explored what people with MS valued most from their treatment and their key expectations for their treatment.
MS:BE study will explore how treatment expectations and priorities are related to beliefs about medicines in MS patients. Also assessing the patients’ perceived degree of involvement within their treatment by assessing components of communication, treatment choice, decisions, and satisfaction.
Self-report measures of Treatment expectations, priorities, beliefs and treatment empowerment will be assessed using the TaP-MS Survey, the Belief about Medicines Questionnaire (BMQ), and the Treatment Empowerment Scale (TES) respectively.
1 Atlas of MS 2013: Mapping Multiple Sclerosis around the World. London: Multiple Sclerosis International Federation; 2013. Available at: http://www.msif.org/about-ms/publications-and-resources/. Accessed December 8, 2017
2 MS Trust. (2017). Prevalence and incidence of multiple sclerosis. [Online] Available at: https://www.mstrust.org.uk/a-z/prevalence-and-incidence-multiple-sclerosis [Accessed 8 Dec. 2017
3 Treatment Expectations and Priorities of People with MS. (2017). [Online] London: Spoonful of Sugar, pp.3-7. Available at: http://sos-adherence.co.uk/research/tap-ms/ [Accessed 8 Dec. 2017].